A Worthwhile Cause
Filed under: InspirationCLICK HERE to read up on and donate to a very worthwhile cause.
"Fight SMA is an international nonprofit organization dedicated to finding a treatment or cure for spinal muscular atrophy (SMA), the leading inherited killer of children under two."
Posted: May 26, 2008 at 2:53 pm
FIRST!
sexy. first
Awwwwwwwwwwwwwwwwwwwwwwwwwwwww
Nice.
PERIOD BLOOD CLOTS IN YUR MOUTH PEREZ
i will donate!!
aww
A worthwhile cause: Ending MGM (male genital mutilation) in America. Circumcision is EVIL!!!!!!!!! "Top Ten Ways MALE Circumcision Hurts Women!": SexAsNatureIntendedIt dot-com
DO NOT ELECT A GAY BLACK MUSLIM. THINK ABOUT IT. DO YOU REALLY WANT TO PUT THE BLACKS (THE PEOPLE THAT ARE FUCKING UP THIS COUNTRY) IN CHARGE OF IT? DO YOU REALLY WANT TO PUT A MUSLIM IN CHARGE OF THE WAR ON MUSLIM TERROR? DO YOU REALLY WANT TO PUT A GAY IN CHARGE OF STANDING UP FOR MORALITY? PLEASE VOTE WHITE PEOPLE!!!
DONATE!!!!! ITS A GREAT CAUSE!!! WE NEED TO GET RID OF SMA!
first!!!
Thanks for bringing attention to this important cause. A friend's child was recently diagnosed with this tragic disease. Neither parent realized they were carriers.
Hope your readers help fight SMA.
Circumcision is a human rights violation. Being an intact (aka uncircumcised/uncut) GAY Latino, you should *know* that, Perez! Shame on you for not promoting this worthwhile cause.
Re: BLACKHATER – You're an idiot.
How much of a cut do you figure fat fake Perez gets? 10%? 20%? I bet he demands 50%+ and a small boy to molest.
THANK YOU! Perez, by highlighting spinal muscular atrophy on your site - TREMENDOUS awareness has been made. Those of us that live with this disease in our families can never thank you enough for the attention you have drawn to SMA! Together we WILL find a cure!
Wow, the early responses to this post are really sick. These poor people are having to watch their child slowly lose his abilities and probably eventually die, but you people have the audacity to respond with disgusting and racist comments. It really sickening and in this case I hope what goes around, will come around.
Anyways- thank you for posting this, Perez. It's heartbreaking and I hope a lot of people will donate after watching it.
Re: BLACKHATER –
i agree with you but this is not the proper thread to put it in
Did the people making the COMPLETELY unrelated comments even take the time to watch the video ?? I highly doubt it. Such a sad world that we live in.
Holly. It may be just for "image" but I bet you watched it and now know about it!! That is the best publicity any cause can hope for.
:D STOP WHORING THE JONAS BROTHERS, JUST 'CAUSE YOUR FATASS IS IN BED W/ DISNEY!!!!!!! Thank youuuuuuuuuuuuuuu….
NOTHING WORSE THAN SOMEONE USING FALSE CHARITY TO MAKE THEMSELVES LOOK BETTER.
stop spamming us with false charity. pick one and put it in the side bar.
Perez, you have been putting up more and more advertisements for promising and progressive charities! I am so happy you do, please ignore the incompetent fools who say otherwise. Keep doing it! its your duty as someone who blogs publicly.
Perez, pay no mind to the heartless people who spew their venom on your website. I feel pity for them because they are obviously missing the "kindness and compassion" genes. My son has had a heart defect and we have been fighting this since he was ten years old. He now has a pacemaker at the age of twenty-five and has had to alter the plans that he had for his future. Sure, he is glad to be alive, but remember us at that age? We thought that we were invincible and that we could achieve anything that we wanted. Any parent with a sick child knows that this process ages and exhausts us, both physically and emotionally. We live for the day that a cure is found for our children.
Perez, keep doing what you are doing. I do not believe for one moment that you do this for publicity. You are doing because you have a tender heart and the compassion that comes with it. You have achieved fame, but haven't forgetten about the rest of us everyday people. I will donate to this cause because the only way that a cure can be achieved is through research.
My thoughts and prayers go out to the many parents and their afflicted children. May God bless them and give them the strength and fortitude to continue forward.
Please, please, donate to this cause to help cure this horrific genetic disorder!! There can be a cure found, we just need the money to fight this disease!! Please donate…it's the right thing to do!!
Please give, my daughter has this too!
www.curesma4lindsey.com
lisa
I was shocked to see sma awareness on this site I think it's great my niece died from this at the age of two. It's an aweful disease!!!! Thanks Perez!
For heaven's sake Perez, GIVE IT UP. Who the fuck has money for *anything* let alone those obscure pet causes you are such a champion of. If it is so fucking near and dear to you, ***HOST A FUCKING CHARITY EVENT!!!*** This is a goddamn blog. The last thing you wanted money for was African Negros with AIDS. You are getting to be a real asshole. No pun.
thanks perez, my brother has sma
Thank you, Perez, for putting Spinal Muscular Atrophy (SMA) out there in the public! SMA is the number one genetic killer of children under the age of 2. This is a passionate cause of mine, and we are quite close to treatment and a cure. It is estimated that if funding is available, we are just a few years away from having a cure to this illness.
I am a 25 year old woman with SMA type II. Again, I thank you for having FSMA on your website. I was excitedly surprised to see this cause on your main page.
This is a worthwhile cause.
Please donate and help these babies!
to perez hilton,s foundation for anal tearing help ;; give till it hurts
Thanks for shineing a light on SMA– the worst thing you will ever witness is a baby that dies from this. I watched my friends son die of this. tragic. Please Donate!!
This made me cry
What a beautiful baby
SMA? Snazzy Mulatto Alcoholics? Cool!
Re: Kendra – Bless you Kendra!
Thank You for this posting Perez!
My daughter story is at Kaylieelizabeth.blog.com.
Fight SMA!
These children slowly wither away to death because not only is there not cure but ultimately there are only a very treatments which can extend quantity of life but not the quality. Then you must search out one of the few medical professionals that works with this disease because there is no such thing as a standard treatment plan for SMA.
1 in 6000 live births result in SMA, but no one has ever heard of it. My daughter died 1 day after her first birthday. When she was born we were told that she was healthy, at 3 months of age I noticed that she was not hitting her developmental milestones, I spent 3 months trying to convince health care professionals that my daughter was sick. We couldn't get anyone to help us figure out what was wrong with our daughter. When she was 6 months old the disease had progressed to the point where she was unable to breathe consistently without medical intervention. She lived the next 6 months of her life in an ICU. (kaylieelizabeth.blog.com) Take it from me the mechanisms of this disease are absolutely horrible. The worst thing about my SMA is how it seems to be completely ignored by the federal government, the medical community, and public attention. Please donate because this diease could potentially be cured with in 10-20 years but it must be funded. This disease could easily be screened for with newborn testing but it is not due to a historical bias against not testing for dieases that cant be cured. Most of these babies do die, a slow death but no one has ever heard of SMA. Why! Please help other children like my daughter by donating to FSMA.
I support Senate bill 2042 and House Rep. Bill 3334 for the SMA Acceleration Act.
Once my Daughter got a diagnosis of SMA, we began acquiring bills for her treatment. We were not poor enough to qualify for Medicaid but when the bills get into the millions of dollars can anybody afford this. We got approved for Medicaid 10 days after her death. This is with daily calls from myself, my husband, hospital administrators and social workers all trying to move the process along.
Thank you so much perez for bringing this horrible disease to america's attention. I lost someone very close to me from this disease, and make donations regularly. I can only hope that ppl take notice and make a donation so we can start to find a cure.
Thanks again
Perez thanks for posting that video. Don't listen to the ignorant people on here.
Perez-
My family cannot thank you enough, nor Fight SMA!
& every family & friend of a child born with this tragic disease…
This is HUGE for us.
We have no celebrity face to help us raise the funds needed to find a cure & by posting the link you gave us a name! a face! a 3 minute story that moves people…to hopefully donate. Thank you Thank You THANK YOU!!!
Billy Therriault's aunt
Very sad! Poor kids! Everyone should donate….. although there are so many problems in the world that need $$! It is so hard to help everyone…..
Re: Andrea – This is a disease that could be cured very quickly if it is funded unlike other diseases that have been funded for 50 years and still have no cure.
can you please stop putting up these "worth while causes" were here for celebrity gossip only!
Do we have to wait until some celebretard and her douchebag boyfriend have a kid with this illness before anyone cares. I have never seen a Perez post with so few comment and have of the comments are mine. 1 out of every 40 people carries the missing gene. Does anyone care about SIDS (Sudden Infant Death Syndrome) because MANY of those deaths are undiagnosed cases of SMA.
to the perez hilton charity for anal crackingtoo mant anus,s are being torn up please help us;; homo,s against spinky splitting;; give till it hurts
Thank you Perez! This is such a great video and a worth while cause to donate to. Many people don't understand what it is like to live with SMA every day. Our daughter has SMA (diagnosed at 6 months) and we are thankful for each and every day we have with her - she is the joy of our life. People really take things for granted and some of the comments on this blog surely show this. It is just great that you have posted this and got awareness out - WAY TO GO!! Thank you!! FightSMA!
THANK YOU! THANK YOU! THANK YOU for bringing attention to SMA. My nephew passed away from SMA type 1 at 3 months of age, it is a devastating disease that no child or parent should ever have to deal with.
Please support FIGHT SMA and help to find a cure!
I heard from Jaiden James Federline has Spinal Muscular Atrophy not Fetal Alcohol Syndrome. I also heard that both Paris Hilton and Benji Madden may be carries for SMA. (think about how they both have the wonky eye).
Perez,
Thank-you for posting this wonderful video about our very dear friend Billy. My son will be 3 in June and also has Type 1 SMA and we live in the same town as Billy. These kids are the TRUE news out there. This IS very important and this disease does NOT discriminate. ANY celebrity…any PERSON reading this website could be a carrier of the SMA gene. While my child and EVERY SMA child is a wonderful blessing…this is a hard life and for your readers who don't think it is something they should pay attention to, they are very wrong. The more information about SMA the better and the sooner we find a cure the better. Bravo for posting about this disease that affects my child and many others out there.
Re: miss ashley – why don't you get a life and get involved in something that is worth while instead of wasting your brain on celebrity gossip. Grow up sister!
Re: miss ashley – Miss Ashley Carries the SMA gene
Re: Gloria Alred – do you really think this disease is something to joke about? I wouldn't wish this upon anyone. You should be more grateful for what you have and not take things for granted. Get a freakin' life!
Kudos to you for posting such a worthwhile cause. Kudos for you for helping to spread SMA awareness. Thank you!
Re: miss ashley – Miss Ashley Carries the SMA geneRe: cracker – Oh my bad, maybe I should model my life after a spiritual savant such as yourself. Cracker covered me with his SMA coated jizz
My eyes teared up watching that Video. I have two little boys of my own, and I feel blessed that they are healthy. To think that 1 out of every 40 people in the us carry the gene for sma is scary to think about. My heart goes out to the kids and families of the kids that suffer from sma….. I am going to donate we need to find a treatment.
Re: cracker – Maybe I should model myself after you, I'm sure your a real spiritual savant. Carring the gene does not mean that you have the disease but carries should have the right to know if they carry the gene. Wouldn't you want to know! Hell you are probably the type of MthFR that would walk out on your family if someone you know is effected
I'm so glad you put this up! I work with a family with SMA and there needs to be a cure. You can also go to Families of SMA, www.fsma.org. Thanks Perez!
I have worked with a child with SMA. I am very glad to see you have this on your blog.
My nephew has SMA. He's 8 now, wheelchair (wc) bound, and will never walk unless a cure is found. He doesn't even have enough energy to open doors. His parents are awesome, though. They got an electronic wc van, he has a motorized wc, and they now have an elevator in their home. They take excellent care of him, and these are middle class people, not the rich.
Thanks for bringing attention to SMA. A friend's child was recently diagnosed with this tragic disease. Please donate!! It's for a good cause!!
Thanks for posting about this Perez. This is a great cause.
To al you fuck nus, grow up.
Spinal Muscular Atrophy does not discriminate by gender, race or age. One in 40 of the people who have posted here carries the SMA gene. Both parents must carry the gene and then their child has a 1 in 4 chance of having SMA. My son was diagnosed at 8 months of age. He never sat up, crawled or walked. Like all SMA parents with a child diagnosed this young, we were told that our son would likely not live past the age of two. This life-teacher of ours fights the fight against SMA every single day of his life of eight years, with every breath he takes. He is my hero. He has fought with grace and has achieved so much despite the fact that he is so physically challenged, despite the fact that he basically cannot move, cannot sit up unsupported, cough on his own (let alone breathe properly without assistance) or eat. Please visit rebeccarun.com to learn about a very importance fundraising 5K run/walk.
i'm a 27 yr old female living with a form of SMA, and while I (almost always) enjoy every moment of my life, I never lose hope that there will be a cure there one day. Thank you so much for recognizing the importance of this cause.
thanks perez!!! www.fsma.org is also a great resource
Just donated… didn't know about this…. Good luck and I hope the find a cure or any treatments that can help..
LOL AT RETARD BABY LOLOLOL
donate!! my niece unfortunatly died from it a couple years ago! donate!
PLEASE DONATE! my 3 year old nephew has sma.
WAY TO GO PEREZ! MORE PEOPLE NEED TO KNOW ABOUT THIS TERRIBLE DISEASE. MY 5 MONTH OLD NEPHEW DIED FROM SMA IN 1999. THERE IS A GREAT NEED FOR MORE PUBLIC AWARENESS. THANK YOU FOR YOUR HELP.
good job, perez. keep it up! these "worthwhile cause" blogs are the most important blogs you have ever typed (don't get me wrong i still love celeb smut).
don't ever let the haters bring you down, all the people with a heartbeat and a working brain can tell that you're being sincere.
major kudos.
Forgive the language, but, oh so man assholes ruining an otherwise (at least from this corner) much appreciated bit of exposure for this awful disease. I am a parent of a fantastic little 2.5 year old boy, and there isn't a single minute of the day I'm not trying to improve his life in some way. The most exciting (and frustrating) part of SMA at the moment is that we're so very close to some great treatments, if not a cure. I know, I know, you've heard 'we're close to a cure' before. Again, that's what's so frustrating: in the case of SMA it's actually true! Shout outs for the awareness builder Perez, and ignore the haters.
Re: haha –
"SMA? Snazzy Mulatto Alcoholics? Cool!"
WHAT THE HECK??
Re: miss ashley –
"can you please stop putting up these "worth while causes" were here for celebrity gossip only!"
Well Perez has been expanding the content of his blog. So yeah, it's not 100% celeb gossip, but oh well, it's a nice break from constant pointles, shallow, meaningless info.
Re: Gloria Alred –
"I heard from Jaiden James Federline has Spinal Muscular Atrophy not Fetal Alcohol Syndrome. I also heard that both Paris Hilton and Benji Madden may be carries for SMA. (think about how they both have the wonky eye)."
WHAT THE HECK??
Re: Smile – Sorry to hear about your nice, it's not fair at all
these little toddlers should have to suffer like this!
That's so terrible - And the little boi is gorgeous! - TRAGIC! - Screw all of you people being rude about something so serious - Wow….
My friend's son has SMA - thank you for posting for this cause.
Thank you, Perez. This means alot to me since I have SMA myself. I was diagnosed with type 2 SMA at two and a half years old, and the doctors weren't sure I would make it to be three, but here I am, 25, and a college graduate. Please, if you guys are thinking of donating, it's a worthwhile cause, and every dollar is needed. Donate there, or to MDA, the Muscular Dytrophy Association (yes, the one Jerry Lewis does the telethon for on Labor Day Weekend), which SMA is one of the 40+ neuro-muscular diseases they research cures for. It's thanks to these organizations that I'm still here and living well with the chairs, braces, treatments, and surgeries I needed to survive.
If you can't donate, then writer your local Congress Rep. There's a bill coming up soon for funding to speed up research of treatments for SMA nationwide, and to organize all the labs working on it. If every you wanted to see your tax dollars go to work on something meaningful, this is it.
what people need to do is donate to LABS that work with SMA. Put you money straight to the people who are trying to make a difference. Donate to Science. Donate to Labs.
Hey Perez — The President of FightSMA, Martha Slay's son, Andrew, went to my high school and then to my college (University of Virginia). He's one of the most awesome guys I've met - very upbeat, smart, optimistic and friendly. It's definitely a worthwhile cause and I encourage everyone to donate!
how sad made me cry poor baby!
Re: HA!HA!HA –
actually my doctor says i'm about 10 lbs underweight, but you would know better than him, right?! …cause you apparently have super powers that let you see through your comp monitor, enabling you to see who is typing what and give a proper assessment of their intelligence.
save the drama for your mama. your insults are lame and you'd probably get your ass handed to you if you ever started shit in the real world.
thank you for bringing SMA to everyones attention, my sister died of this horrible disease, and a cure needs to be found for all the other sufferers and family members who are tragically affected by this awful disease please keep donating
These are my old neighbors they are such amazing people! they are ALMOST at a cure!!!!!! with donations they could get really help them find a cure within 3 years.
Billy the little boy feature is almost a celebrity in his own right being the one of the few children to live over 2 yrs old.
all these digusting comments you people are leaving are terrible! This poor family is going through hell right now and all you can make racial and sexual slures…..what is wrong with you people? I hope this little boy makes it to his third birthday and they find a cure so no other parents have to go through loosing a child. My heart is with all these parents.
Thank you so much for posting this– I have had SMA for my whole life and it really means a lot when it gets some attention like this. It is a very worthwhile cause, and I thank you so much. To all those who have donated or just shown their support, thank you as well!
thanks Perez! fightsma people need to know!
My husband has SMA Type 2 and has beat all the odds in every way. He turned 43 in February and has a very successful career in banking, homebuilding and other business ventures. You can learn more about him on You Tube, just type in "Lucky Mutant". Even with their physical limits, SMA patients are some of the most sociable intelligent and humorous people you will meet.
PREVENTION: Genetic testing can determine whether you and your partner are carriers of the recessive SMA gene (or other genetic disorders) before you plan a family. The odds that YOU carry the gene are 1 in 40. How many people are in your high school, workplace or social circle? Care to roll the dice?
If you AND your partner have the gene, you have a 25% chance of having a child with SMA. For me, those odds are too high considering the DEVASTATING consequences for the BABY if he/she has the disorder. You can utilize IVF with preimplantation genetic diagnosis (PGD). There is a 1% chance of error. Isn't that about the same odds that your birth control will work?
Another thing you might want to know is that there are FOUR types of SMA! While some of the people on this board may say nasty things, they could actually have it. Type 4 affects ADULTS! Every heard of Lou Gehrig? Yep, he had SMA Type 4. Type 3 affects TEENAGERS! Type 2 affects CHILDREN over 2! How would you feel if your child developed symptoms at any of these stages and all the while you were nurturing and planning for an "uncomplicated" future?
To quote SMA mom: Does anyone care about SIDS (Sudden Infant Death Syndrome) because MANY of those deaths are undiagnosed cases of SMA?!
This is very true. In addition, the DNA test for SMA takes 3 weeks for results. That is a very long time for a newborn baby who can't breath or eat well. The ICU is not the place for any person or child nevermind a NEWBORN BABY.
WHAT TO DO: SMA testing at birth should be included in the battery of standardized tests. The sooner you know the sooner you can get proper treatment and care for your child. We need awareness and personally I don't care by who or how - the more people who know the better. Lastly, Money… research needs money.. enough said.
GOOGLE: Spinal Muscular Atrophy, SMA Awareness, Spinal Muscular Atrophy Research
Googling SMA brought me to this website.
—-
My daughter, my inspiration:
Jolie Ava
January 16, 2008 - April 30, 2008
This is such an important and worthy cause….and can be quite personal to those who know who have it ….I know where this charity started and it is very real and sad. Please try and help if you can in any way. Start a fundraiser in your area, help spear head this charity to help small children
#18- Sarah-I could not agree with you more!!!!!!!!! those comments were disgusting and yes this is a great cause to support
ps. karma always comes back around
Our children are so precious. SMA awareness is so important so that research and genetic testing can be funded. If you have been touched by an Angel it is something you will always remember. Thank you for doing your part Parez. Auntie AL