A Worthwhile Cause
CLICK HERE to read up on and donate to a very worthwhile cause!
"The core mission of The International Rett Syndrome is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.
Rett syndrome (also called Rett disorder) is a neurodevelopmental disorder that is classified as a pervasive developmental disorder by the DSM-IV. It was first decribed by Austrian neurologist Andreas Rett in 1966. The clinical features include a deceleration of the rate of head growth (including microcephaly in some) and small hands and feet. Stereotypic, repetitive hand movements such as mouthing or wringing are also noted. Symptoms of the disorder include cognitive impairment and problems with socialization, the latter during the regression period. Socialization typically improves by the time they enter school. Girls with Rett syndrome are very prone to gastrointestinal disorders and up to 80% have seizures. They typically have no verbal skills, and about 50% of females are not ambulatory. Scoliosis, growth failure, and constipation are very common and can be problematic. Many argue that it is misclassified as a pervasive developmental disorder, just as it would be to include such disorders as fragile X syndrome, tuberous sclerosis, or Down syndrome where one can see autistic features. The symptoms of this disorder are most easily confused with those of Angelman syndrome, cerebral palsy and autism."
Being Brangelina
Maybe She is "Just Fat"
Please donate! I did!
what an awesome cause.
p.s. that kid is the most adorable thing ever
great cause!!! Please donate.
Thats so great please donate
Thanks for including this Perez. Currently, I'm writing my senior thesis on RS as it remains generally unknown. With more awareness to this disorder, more research can be done to ensure these children a better future!
Thanks for talking about Rett Syndrome! My cousin has it and she is the most adorable thing ever. Much more support is needed so please help!
Thanks Perez..my nephew tested negative for fragile X..maybe this is the key…he has all the symptoms
I am a mom of a "Rett Angel". She is a sweet and wonderful little girl and with research there is real hope for a treatment for this awful syndrome. Oct. is Rett Syndrome Awareness month so a donation would mean the world to so many!
Perez, thank you so much for including us and thank you to everyone who is donating to this very worthwhile cause. I know my baby girl, Olivia will definitely benefit from every dollar coming in.
Abby, who is sitting on Julia Roberts lap, has since passed away - let's make sure no other girl dies from having this syndrome!
Abigail was the sweetest little girl.I had the pleasure of meeting her and Julia while volunteering with the Rett Syndrome foundation a while back.A great cause, for a little known disease.Please help out, if not financially then by spreading the word!
Thanks for posting this!! This is a subject very close to my heart, and any raised awareness (let alone donation) on the part of your readers will no doubt help the cause.
Thank you for posting this on your website! This is a cause very close to our hearts!
My college counselor's daughter has that. My heart goes out to all the families that are affected by this disorder. Donattttttteeeeeeeeeeeeeeee!!!!
Dear Perez thank you so much for posting this article. My daughter has Rett Syndrome and it is heartbreaking watching her battle it everyday. So much is happening with the research and there is potential to help other children/adults with disorders such as autism and even schizophrenia. There are teams all over the world working together to help our girls and I am eternally grateful to them all. If your many aussie readers want to learn about the exciting work happening right here in Australia they can go to www.rettsyndromeaust.org.au and read all the last research info. Once again thank you for allowing this wonderful opportunity to create more awareness about rett syndrome and our silent angels!
My neice has RS. No doctors in the area know much about it….this research is critical. Thank You for donating!
Bless you Perez! My own 4 year old daughter has this terrible syndrome and with everyday that does by we fight and fight for hope and funds for this cause. I believe you probably just tripled all our efforts! You have no idea what this means.
www.girlpower2cure.org/abby
my sister has rett syndrome! omg its so nice that people are learning abou it. my sister Amy is 25. she wears diapers and cant talk. she cant learn things. she doesnt understand anything and we cant take her out bc she freaks out.
thanks