A Worthwhile Cause
CLICK HERE to read up on and donate to a very worthwhile cause!
"American Partnership for Eosinophilic Disorders (APFED) is a non-profit organization dedicated to patients and their families coping with eosinophilic disorders. APFED strives to expand education, create awareness, and support research while promoting advocacy among its members.
A growing number of children and adults suffer from a chronic and complex group of disorders described as Eosinophilic (ee-oh-sin-oh-fill-ick) Gastrointestinal Disorders (EGID). These disorders are characterized by having above normal amounts of eosinophils, a type of white blood cell, in one or more specific places anywhere in the digestive system. EGID is further subdivided into organ-specific diagnosis. For example, Eosinophilic Gastritis means eosinophils infiltrating the stomach. "itis" means inflammation. While visual inflammation is not always present, inflammation may be apparent under the microscope."
The Name We Shall Not Speak!
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Oh. My. God. Thank you Perez. Not one, but two blogs on your site this week? I'm kind of overwhelmed (tears) right now. The Demi Lovato Honorary Ambassador mention with the APFED backdrop was one thing, but this just blows my mind.
We cannot thank you enough for putting this out there to the general public. This group of diseases is on the rise and people need to be thinking about it.
I don't always see eye to eye with your site but I read it everyday anyway. You have continued to support many wonderful causes with your massive readership and I know other groups are grateful as are we.
Thank you very much.
Beth Mays
President/Founder
APFED
As the Mom to a 5 year old with Eosinophilic Esophagitis, I was thrilled to see this on your site Perez! Maybe people will stop looking at me like I am crazy when I name his disorder…
Thank you
Thank you
Thank you
My 6 year old son has eosinophilic gastrointestinal disorder
He is on a feeding tube
No one but other eos families understands what we go thru
Our world is surrounded by food
Which could harm our eos child
THank you so much for spreading awareness
It really brought tears to my eyes
when I saw this
THANK YOU
THANK YOU
THANK YOU
Please support apfed
thank you
thank you
thank you
Perez,
Huge thanks for the exposure here. my son Aidan 5 y/o has "Eosinophilic Gastroenteritis".
I'd like to shout out to Demi Levato as well. She is our Star…please give here positive exposure when you can.
APFED is a wonderfuil organization! nice job
my best,
John (Aidan's daddy)
OMG! THANK YOU SOOOOO MUCH PEREZ! My wonderful and very cute son ( see pic ) suffers from these terrible disorders, it is something he deals with every minute of the day. He wears a back pack with a feeding pump 22 hours a day. We are praying for a cure, because kids that cute should not suffer so much.
I was excited to see the photo of Demi Lovato with the APFED backdrop and now additional recognition!!! My son was recently diagnosed with eosinophilic gastroenteritis. I hold out hope for a cure and it is encouraging to see recognition coming to this collection of disorders. Thank you Perez, sincerely thank you!
Thank you and Mahalo Perez for doing a shout out to APFED. This organization helps those who suffer with Eosinophilic Disorders. Dealing with this disorder changes everything for families involved. No birthday cakes, no family dinners or celebrations. No school or work parties involving foods.
The symptoms can include severe chest and stomach pain, shortness of breath, nausea, vomitting, and choking with eating. Many parents suffer not knowing how to help their children improve. No funding by the National Health Insitutes to do research yet like other disease. APFED is a place of support, advocacy and hope.
Re: PBVIVI –
Well said
APFED rocks
Thank you, thank you, thank you. With awareness comes answers for my son!
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