A Worthwhile Cause
CLICK HERE to read up on and donate to a very worthwhile cause!
"Welcome! The Infantile Scoliosis Outreach Program (ISOP) is pivotal in connecting families of children with progressive infantile scoliosis to resources and information needed to make the best choices possible in the care of their child. As you view our site you will find current and relevant information on infantile scoliosis, such as Early Treatment with serial corrective plaster jackets/casts, and other research pertinent to progressive infantile scoliosis.
ISOP is moving forward in our mission to educate and advocate on behalf of children living with scoliosis via our various programs. Through the CAST online support group, hundreds of parents come together to share information and experiences and to make lifelong connections with each other. Through our Medical and Family Outreach Programs, and our Early Treatment Program (ETP) Seminars, ISOP is heightening awareness among the medical community and general public about the importance of Early Treatment for progressive infantile scoliosis, and helping to provide access to the most progressive care options available to infants and children effected by this condition."
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i had scoliosis at a very young age. i had the spinal fusion at 14 and now at 31 years old, i'd like to report that the procedure has ruined my life. you cannot begin to imagine the pain i live with every single minute of my life. please think of all the other options out there and make sure to get 3.,4,5 even 6 recommendations b4 you possibly ruin the rest of your childs life… my doctor lied to me and as a result, i am the way that i am today.
I was born with scoliosis….but i have 2 curves in my spine (one much more severe than the other) so i was told that surgery or a back brace were not an option. Although i understand that the surgery dosent always have a positive outcome i would give anything to have been given the option to fix my scoliosis in some way. Im 21 now and have to live with constantly feeling abnormal and that people are always staring and laughing at me because its obvious that there's something wrong with me. Even such simple things as having to wear size 18 clothes to hide my curve and not being able to go swimming on holidays coz im too embarassed about my image have made life really difficult. Id advise parents to think ahead about how things will affect their children when they are grown up…coz im my opinion thats when it starts to affect u the most.
I as well was born with Scoliosis. I have been told that surgery is already an option and may soon be something I will have to do. I have some serious insecuritys as well, although I have been told mine does not seem to be noticeable, even by the docs. Which makes me feel a little better, but knowing that kind of surgery is probably in my future, just makes me hate it all over again. It does effect clothing, bathing suits, many things you take for granted. I also have huge breasts which really doesn't help with the back pain. I did the back braces when I was little, but unfortunately being 7 or 8 years old and being told you have to sleep everynight with the big plastic corset on, didn't work so well. I would take it off in my sleep and not even realize it. So now I will have to pay the price.
PEREZ!! I Have always been a fan of your site, but never like today! THANK YOU for bringing such an important cause to the spotlight. ISOP has helped so many children–including mine–find corrective and successful treatment for infantile scolisosis without the need for painful procedures. THERE IS AN ALTERNATIVE! This orgranization has truly worked miracles for countless familes. Please consider donating to this WORTHWILE cause.
WOW! So glad to see the Infantile Scoliosis Outreach Project in your Worthwhile Causes! ISOP has helped my son who has Infantile Scoliosis tremendously. They advocate for a gentle (non-surgical) treament for progressive cases. I'm making my donation now! And urge all of your readers to do the same. Thanks Perez!
omg i have scoliosis and i am 14, i have the one where my spine is like an S
its so annoying it makes me look so ugly cause one of my ribs stick out and i have a lump on my lower back and my upper back. blech. thanks for putting this up perez atleast its not only AMAZING gossip your interested in 
hahaha xxxxx
I have scoliosis, but it hasn't stopped me. Though I could get disability from the government, I do not. I go through pains now and again, I can't even "pop" my back normally. Thanks for the outreach.
OMG I've heard of this. I know one little girl that has it. Prayers to all that suffers from this horrible condition.
thanks! pour kids
My son's life and spine are being saved at this very moment by this incredible organization!!! His spine was on a collision course to crush his heart and lungs, he could have died before age 3. Now he will lead a completely normal life without having to undergo painful, invasive surgeries or suffer severe deformity. ISOP is a MIRACLE, and the single mom who founded it, Heather Hyatt-Montoya, is a true hero! Perez, thank you so much for supporting ISOP, this charity is such a worthy cause! You can read Bexon's story on www.Breezymama.com right now.
Perez,
Many thanks for featuring this most worthy of charities. ISOP saved our son Bexon's life. I wrote and directed the film "Mini's First Time", starring Alec Baldwin and Nikki Reed and I was so moved by what the founder of ISOP did for our son that I decided to shoot a PSA for them. We are shooting it this Thursday with Peter Gallagher (The OC, American Beauty) who has generously donated his time.
Infantile Scoliosis is different than adolescent Scoliosis and far more dangerous. It can easily be life shortening and threatening. Children with Progressive Scoliosis who are not treated early and properly will experience severe deformity, respiratory problems, repeated and invasive, often ineffective surgeries and psychological distress. This is crippling, deforming and potentially fatal condition, but it has A CURE! We just need to get the word out to parents that corrective casts using the "Mehta Method" can CURE this condition. Especially if begun under age two.
Your picking ISOP for worthy causes is an invaluable tool in helping us make sure that EVERY INFANT in America is checked for Infantile Scoliosis during their pediatrician's visits. And if they have it, they will get the right treatment that will save their lives.
Thank you so much and everyone reading this please donate to ISOP!
ISOP has been a God send for our son. He is 11 months old and has progressive infantile scoliosis. Without ISOP and the support group we would not have known about casting as an option for treatment for our son. This should be on every primary care physician's well baby checklist. The earlier this condition is caught the earlier it can be corrected with this gentle, less invasive casting procedure. PLEASE, everyone out there DONATE NOW to this GREAT organization!!!!! It saves the lives of babies!!!!
Thank you Perez!!!!!!!!!!
xo
Erica
I think I did something wrong the last time I posted, but I just wanted to say THANK YOU PEREZ!!
Love you for this posting!!! XOXOXOXO
My son's scoliosis was cured by this "Mehta Method" of serial casting. He began treatment when he was 12 months old and his curve measured 49 degrees. Two years later he is now at zero degrees with a straight spine. This treatment saved my son's life! The word needs to get out to every doctor that there is a cure. I had to search online for treatment options and thankfully found the ISOP website, www.infantilescoliosis.org. More children need to be saved from deformation, painful treatment and even death. Thank you Perez for spreading the word!
I am 14 and I have Idiopathic Scoliosis, which means that there is no reason why I have Scoliosis. My spine was - and still kind of is - shaped like an 'S'. I had the spinal fusion sugery done about a year and a half ago. But I went through hell and back to get it done. Haha. My curves were to big to wear a brace, so I didn't really have a choice but to get the sugery done. The FIRST time I went to have the spinal fusion done , I had just fallen asleep by the gas and once they tried to turn me over, my left lung collapsed. I was devastated. But they re-schedualed me to get it done again and it finally worked the second time around.. I now have 2 rods , 2 hooks , 20 screws in my back and a scar from my neck down to my ass.
. I still have bad pain every now and then, but I just try to be optimistic about it and and be glad that I got the surgery done, ’cause I know it will help me out in the long run 
But, you know, I try to not let it hold me back. Lol. It's pretty much another part of my life. I even forget that I have it sometimes. Haha
Thanks, Perez, for posting this. Great Cause.
You rock.
xoxo ♥
I can't thank you enough Perez for helping to spread the word about Infantile Scoliosis & supporting such a worthy cause. My daughter is 13 months old & was diagnosed with IS when she was 8 months. As soon as she was diagnosed I scoured the internet for info. That's when I came upon ISOP. Without this group, my daughter would be on the road to a lifetime of invasive surgeries with 100% complications. She'd have rods in her back & her growth stunted at such a young age, not to mention the possibility of respiratory dysfunction, deformity & pyschological issues. ISOP has truely SAVED my daughters life. It's a non profit organization that educates dr's about this process of casting. It's the "Mehta Method" of casting that has literally given my daughter the chance to live a full & "normal" life. She's currently in her second cast & will hopefully only need one more since we started her at such a young age. More parents of Infants with Scoliosis need to be informed & educated about this life saving method & CURE. Dr's need to be educated & we need to go from the handful of dr's that practice this method to all dr's and hospitals. Please donate to this worthy cause. Everyone is always looking for cures and here we have one. We need help spreading the word & getting dr's trained. I owe my life to ISOP & I thank you so very much for getting this info out there. You can read and learn more about Infantile Scoliosis at www.infantilescoliosis.org
Re: perezlove22xo – God bless and love your positive attitude!!!
Thank you so much for listing ISOP as a worthwhile cause. My daughter, Isabella was diagnosed in April 2007 with a 51 degree curve at the age of 12 months. She has idiopathic infantile scoliosis. She is casted every 2-3 months at Loma Linda University Children's Hospital. In the past two years, he curve has gone down from 51 degrees to 19 degrees. We are almost there!!! Casting positively works and is a much more gentler and effective way of treating infantile scoliosis. I am so indebted to ISOP and our Mehta trained doctor. We were very lucky to start off with a Mehta trained doctor from the start. Many parents are not as fortunate. We must continue to spread the word as casting is not well known. It is an effective treatment and we must make sure it is available to every child with infantile scoliosis not to mention make sure insurance companies cover the procedure. I have had to fight and fight for my insurance to cover her treatment, but luckily, I've won every time. Thank you again for shining a spotlight on ISOP. You have a new fan in me, Mr. Perez Hilton. You've done good, damn good!!!