A Worthwhile Cause

Filed under: Inspiration

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CLICK HERE to read up on and donate to a very worthwhile cause!

"About Sjögren’s Syndrome

Sjögren’s syndrome is a chronic autoimmune disease in which people’s white blood cells attack their moisture-producing glands. Today, as many as four million Americans are living with this disease.

Although the hallmark symptoms are dry eyes and dry mouth, Sjögren’s may also cause dysfunction of other organs such as the kidneys, gastrointestinal system, blood vessels, lungs, liver, pancreas, and the central nervous system. Patients may also experience extreme fatigue and joint pain and have a higher risk of developing lymphoma.

With upwards of 4,000,000 Americans suffering from Sjögren’s syndrome, it is one of the most prevalent autoimmune disorders. Nine out of 10 patients are women."

    Posted: Apr 8, 2010 at 8:44 am / Email this  »

    17 comments to “A Worthwhile Cause”



    1. 1

      Perez…Perez…WOW a big THANK YOU for bringing attention to such a worthwhile cause. A co-worker of mines mom is one of the ladies pictured above. We could not thank you enough for bringing this to the attention of all your loyal followers. Way to go….



    2. 2

      Additionally, it is important to note that women who suffer from this disease that are in childbearing age can have this disease attack a developing fetus' heart in utero causing congenital heart block in the baby. My daughter, now 13, has a pacemaker and it was through that pregnancy that I was diagnosed with this terrible disease. I am thankful she is doing so well.



    3. 3

      Thank you Perez for promoting this debilitating illness and other autoimmune diseases. F



    4. 4

      Thank you Perez for discussing this debilitating disease as well as other autoimmune diseases. For more information on auto immune disease lupus, you can visit my site at lupuscelebrity.com Perez, we appreciate your support so much for posting on these diseases that affect so many of us but get very little attlention in the media.

    5. Egorf says – reply to this


      5

      Perez THANK YOU for posting information about Sjogren's syndrome and promoting such a worthwhile cause! Sjogren's patients often go YEARS without diagnosis because of the lack of public awareness as well as in the medical community. Thanks for bringing this to the attention of all your readers!



    6. 6

      Wow…something important that isn't gag-gag or peta related? Awesome. Keep up with this….I have fibromyalgia and people need to know more about "invisible" diseases!

      Good one Perez.



    7. 7

      The beautiful women in the photo you featured wish they felt as good as they look. Thank you so much for helping to bring awareness to this debilitating disease that affects so many but is not well known.

      April is Sjogren's Awareness Month, so your post is perfect timing.



    8. 8

      Perez, thanks so much for this post on Sjogren's. I have had this disease for 15 years and I am very sick. It is hard to become so sick at age 27 only to know there is no cure for you disease. I am 42 now and hanging tough!! Please help educate others about this disease. Thanks a million times over!!!



    9. 9

      Thank you so very much for sharing this. I was officially dxed with Sjogren's more than 26 years, but spent childhood ill from it.
      The important thing for people to understand is this, it does not necessarily show signs that you or your doctor can pinpoint immediately, a person may be experincing a lot of wierd things happening and doctors still not able to put them together.

      If you think you may have an autoimmune disease have your doctor run the special blood tests, it will not show up in run of the mill tests, they must search this out and even still there are many that are refered to as serno negative, it does not show in their blood, but they have it.

      Millions have this, but don't know it. They suffer not understanding what is happening to them, some even with doctors telling them it is all in their minds.

      You have to be prepared to advocate for yourself or love one.

      WE DESPERATELY NEED MORE AWARNESS OF
      SJOGREN'S SYNDROME!!

      WE NEED MORE STUDIES/ WE NEED MORE ANSWERS!!!!



    10. 10

      Thank you so much for posting this on this little-known disease. My father-in-law has had it for 30+ years and it is extremely debilitating and affects your entire body. Due to this disease, he has MS and now leukemia. He has fought and beat lymphoma. This disease is a monster.



    11. 11

      hey,i´m 25 and i got diagnosed with this disease about a year ago and it´s really hard to get any straight answers about what it will do to me. and it´s hard at work cuz no one knows anything about it.. so thanks for posting this making people aware.



    12. 12

      THEY KINDA LOOK LIKE A BOTOX ADD TO ME…. LETS GET MORE NORMAL PEOPLE TO VIEW….IM JUST SAYING



    13. 13

      Okay now I am a BIGGER fan o' Perezzzzz! BTW Men get so overlooked with this disease and usually do NOT have dry eyes but GASP Kidney or Liver failure and joint pain! 4 million Americans and climbing this is the MOST undiagnosed & *most prevalent* arthritis out there! Perez did you catch House episode "Lucky 13" they never expanded on patients seizures and spasms and lung cysts… darn time limitations! Bless your heart for posting this! MUAH! 4 million Americans is ALL of LA County or ALL of state of Colorado!!!!!!!!!!! UPenn now has a NEW sparkling testing center for Sjogren's Syndrome YAY!



    14. 14

      Re: superawesomedave – I look that gorgeous no botox! It is an INVISIBLE ILLNESS lovey! It hits men and woman they look lovely so doctors take SIX to TEN years to diagnose saying it is all in one's head… but it hits the whole body! XOXO dave



    15. 15

      Thank you so much for taking a moment to spread awareness of such a prevalent but underdiagnosed disorder. Patients like me (who look absolutely healthy and beautiful most of the time) really appreciate it–invisible diseases are so much more socially debilitating because people can't "see" the scan with the tumor or frail hair loss from cancer (so when we DO flare, people assume that hair loss is a family inheritance or just bad hygiene, even assume we are lazy when we're hurting in ways that don't put us in casts, just put us on medicines to try managing a cure-less ailment).

      Hugs, and huge thanks from 4 million known and millions more whose doctors just figure are depressed or other excuses for an often-sero-negative pathology!!

    16. Bevi says – reply to this


      16

      Terrible thing, this Sjögrens Syndrome, but SHOW-grins is definitely NOT how to pronounce it. It is so, so wrong.



    17. 17

      Perez-thank you so much for posting this! I am 35 and have been living with this disease since I was 19. This disease needs media attention and research as it is so misunderstood. A big thank you for raising awareness of Sjogrens!!!