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A Worthwhile Cause

| Filed under: Inspiration

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CLICK HERE to read up on and donate to a very worthwhile cause!

"1 in 150 children is born with congenital CMV (Cytomegalovirus)

If you are currently pregnant or planning a future pregnancy, you need to learn about CMV.

* * CMV is the most common virus transmitted from mother to unborn child.
* * CMV is a common virus with 50% to 85% of adults already exposed by adulthood. However, women who have not yet been exposed are at risk for contracting CMV during pregnancy and giving birth to a child born with congenital CMV.
* * Congenital CMV causes deafness, blindness, cerebral palsy, mental and physical disabilities, seizures, and death.
* * Infants, toddlers, and children commonly get CMV from their peers and can pass the virus to unsuspecting mothers, daycare workers, teachers, therapists, nurses, or anyone who works with or comes into contact with small children.
* * CMV is spread through saliva, urine, tears, blood, mucus, and other bodily fluids.
* * CMV can be prevented by practicing good hygiene while pregnant. Handwashing after handling or playing with babies and small children is important, in addition to not sharing utensils or drinks and not kissing babies and small children on the mouth or face."

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28 comments to “A Worthwhile Cause”

  1. njlou says – reply to this


    1

    CMV, toxoplasmosis, and parvovirus (Fifth Disease) are all scary while pregnant! I lost a baby last year from being infected with parvovirus while pregnant. It's very important for pregnant women to practice impeccable hygiene while pregnant, but sadly some of these viruses are unavoidable. You'd have to live in a bubble to completely protect yourself. The good news with all three is that once you are infected once in your life, you are immune in the future. Most adults are already immune to parvovirus because most people acquire it in childhood.



  2. 2

    damn.. I thought this was to stop "country music television". I was all ready to donate too.



  3. 3

    great! another thing to worry about while pregnant :/
    Can't wait to have my baby and breath a sigh of relief



  4. 4

    I am a mother o a CMV daughter, and just wanted to personally thank you for putting this out there pErez!!! It means a lot!!



  5. 5

    take a pic for us perez with STop CMV on your palm!!!!!!



  6. 6

    Re: ferni74 – Just wash your hands, stay away from young children, USE GErmX



  7. 7

    I feel bad for anyone who has had to suffer the negative effects of this disease - however, what a sad state of affairs to be told to AVOID kissing babies or small children on the mouth or face…not sure I want to live in a world where we have to start avoiding being affectionate with our children!



  8. 8

    Thank you Perez!!!!!!!!!! I am an area representative for this network in Atlanta Georgia and the buzz this can create is wonderful! CMV should be a standard test for all women how may become pregnant, and even for those who already are! I can't thank you enough for posting this! You ROCK!!!!!



  9. 9

    I am a mother of a CMV child so many thanks for posting this. This is such a preventable virus that affects so many children so thank you for letting so many people be aware of it. You Rock!



  10. 10

    Thank you Perez for posting this! My daughter Ava was born deaf and with cysts in her brain, enlarged organs, and low platelets due to this virus. I would much rather have been warned about the possibility of catching this and had a chance to prevent the damage it did to my daughter than to not know until it was too late.



  11. 11

    THANK YOU THANK YOU THANK YOU for putting this up here! i have a CMV daughter. We are so fortuante that she is mildly afffected. her primary problems from the CMV are speech and development delays and autism. who knew that autism would be a blessing! But so many children have it so much harder than we do. This terrible disease is preventable. Good handwashing and hygiene skills especially while pregnant is the number one way to stop the virus. Research for a vaccine is essential also! Thank you for helping spread awareness of this terrible virus.



  12. 12

    Re: CMV Warrior – CMV is not a standard test during pregnancy because nothing can be done to prevent transmission to the fetus.



  13. 13

    YAY!! I am rediculously stoked that you have posted this. I lost a pregnancy to CMV a couple of years ago and have a niece that was born with congenital CMV. Thanks for helping us raise awareness. Ladies, if you are pregnant or plan on becoming pregnant, PLEASE talk to your doc about CMV!



  14. 14

    Re: bhens12 – - They are finding that things can be done to minimize it's affect on your unborn child. It needs to be a standard test.



  15. 15

    Re: bhens12
    CMV testing hasn't become standardized and mandatory yet.
    But new treatments are emerging that treat the child in utero and have amazing results…many CMV parents have already had them…
    This is still such a new virus, only named in the last 40-50 years with new reseach ongoing…the lack of accurate and timely information online is staggering.
    We just need to get the name out there so that women can at least make informed decisions about their hygeine and healthcare…some of the things we're asked to do while pregnant aren't always a blast, but we can at least assume our own risk when we have been educated.



  16. 16

    THANK YOU, PEREZ! Im so thankful you have shared this on CMV! Hugs and love.



  17. 17

    Hi bhens12, my daughter was already infected by the time I found out about my CMV infection during pregnancy but I received an infusion of CMV antibodies that prevented her from having any long-lasting effects other than the deafness. Today she is a very typical 3 year old who is very active and healthy. Other pregnant mothers who test positive have received the antibodies to prevent transmission to their babies and some doctors even prescribe the antiviral drug gancyclovir during pregnancy to prevent symptoms. There is treatment available but many OBs aren”t knowledgeable about CMV in pregnancy and what can be done. Even if CMV testing isn't made standard during pregnancy, there is no reason that OBs cannot educate pregnant women about the standard precautions they can take to reduce the risk. How many of us are warned about not changing the cat box while pregnant - I would have taken any precautions necessary to try to prevent my daughter Ava from losing her hearing or to prevent my friends from losing their babies to stillbirth due to this virus.



  18. 18

    I am the Saint Louis Area Chapter Rep for Stop CMV and I want to thank you for sharing this. I have a young son that is effected by this deadly disease. WE MUST EDUCATE FAMILIES OF THIS DISEASE. Thank you for being a part of spreading awareness so we can soon STOP CMV! Love and hugs! Thanks again!



  19. 19

    Perez, we STOPCMV representatives can't possibly thank you enough for posting this!! THANK YOU!! I am the Erie, Pennsylvania area representative, and my son was born with CMV. He's my inspiration and my blessing in life



  20. 20

    so you can't even kiss your child on the face???

    So how can you prevent this?
    i was reading about it online and it seems like u're SOL.
    no way you can get away from this



  21. 21

    Re: flora_tink – It only affects your child if you are infected for the first time while you are pregnant. Your body does not have the antibodies to transmit to the baby and the virus attacks its brain development. That is why testing is so important. If you find out you have never had it, then you know what precautions you need to take to protect your child. If you find out you have antibodies for it, then you are in the clear.



  22. 22

    Re: flora_tink
    That's the most stringent language straight from the CDC…and they have to lean pretty conservative on this information.
    But for the most practical purposes, I tell women to just pretend it's cold and flu season your whole pregnancy. Wash your hands after changing diapers or wiping boogers (or get a good smelling hand sanitizer) and just watch the total mouth kissing of the bebes…



  23. 23

    Flora_tink, Robink is correct - research has shown that taking universal precautions such as washing hands, not sharing utensils, and not kissing children on the mouth while pregnant are very effective at preventing CMV infections in unborn babies. Those of us who have been through the nightmare of having our kids disabled or killed by this virus are hoping to help others prevent the same from happening to their children.



  24. 24



  25. 25

    THANK YOU PEREZ!!!!!

    I am the mother of an amazing 4 year old boy who has cCMV….. life has been very rough for him. He has been a fighter since before day one :)

    Go to www.stopcmv.org and read some of the parent stories….

    THANK YOU AGAIN Perez….



  26. 26

    robink, stopcmv, deniseb,
    thanks for all the info, guys.
    that definitely makes sense and doesn't feel like i'm SOL anymore



  27. 27

    Flora_tink, I'm glad we could provide you some info. :)



  28. 28

    Thank you!!! I am the mother of an 11 year old with congenital CMV and also an area representative for this network in Oklahoma. SO AWESOME for you to help raise awareness! THANK YOU!