A Worthwhile Cause

CLICK HERE to read up on and donate to a very worthwhile cause!

"The Williams Syndrome Association (WSA) was formed in 1982 by, and for, families of individuals with Williams syndrome.

The WSA is the most comprehensive resource for people and families living with Williams syndrome as well as doctors, researchers and educators. The WSA provides resources, support and the latest medical information to help your child today and throughout his/her life. By joining, you’ll become part of the largest organization dedicated to improving the lives of people living with WS.

No matter the age or stage of your family member with WS, you are not alone. The WSA offers support and will help you navigate the challenges from diagnosis through adulthood.

If your child exhibits the following characteristics, he or she may have WS.
Medical – Heart or blood vessel problems (narrowing in aorta or pulmonary arteries), hypercalcemia (elevated blood calcium levels), low birth weight/slow weight gain, colic during infancy, kidney abnormalities, musculoskeletal problems (low muscle tone/joint laxity, joint stiffness) and feeding problems.
Physical – Characteristic facial appearances that in young children include a small upturned nose, wide mouth, full lips, small chin and puffiness around the eyes.
Personality – Overly friendly, excessively social personality and relatively strong expressive language skills.
Developmental – Developmental delays, learning disabilities, attention deficit hyperactivity disorder.
The WSA provides the resources and referrals you need now, and a strong and supportive community with which to connect throughout your and your child’s life.

We create a roadmap to help you navigate challenges – it includes answers to common questions, a step-by-step guide, information about WS clinics across the country and best practices for age-appropriate interventions."

Posted: May 12, 2010 at 8:44 am / Email this »

See All 9 Comments

9 comments to “A Worthwhile Cause”

ohdramadrama says – reply to this

1

This is an amazing cause- thank you for sharing this Perez! I worked with kids with Williams Syndrome and they are some of the sweetest kids. Please support them!
vakmck says – reply to this

2

Thank you so much Perez for posting this ! I have a daughter w/ Williams and I am truly flattered that you shared this syndrome w/ your wonderful following of fans and friends. People with Williams syndrome are unique, special people ! Best Wishes to you & Thank you Thank you !!
SaraAlv says – reply to this

3

Thanks Perez. This is a great cause.
wsmommy says – reply to this

4

Thanks Perez for posting this. As a mom of a child with WS this means a great deal to get the word out about these special and unique children. Thank You
Flash68 says – reply to this

5

Thank you for posting about these wonderful individuals and the Williams Syndrome Association. We are thrilled to have your support!
llotsi says – reply to this

6

Thank you so very much for your support for the precious Williams Syndrome children!
crimson11 says – reply to this

7

Thanks Perez!! So happy that you are supporting WS!!!! As a mom it means a lot to have awareness get out and you posting this is a great way! Awesome Perez!! Thanks!!
WSMom says – reply to this

8

Thanks for posting about condition that hasn't received much press. Really appreciate your support!
my7angls says – reply to this

9

Thank-you so much for your support, I am the grandma of a beautiful 4 yr old grand-daughter. until she came into our lives we had never heard of Willams Syndrome, and still we meet very few people who know what it is. With the support of someone as popular as you with such a large fan following more people will learn about Willams Syndrome. so again thank-you from a grandma in colorado