A Worthwhile Cause
CLICK HERE to read up on and donate to a very worthwhile cause!
"The Cornelia de Lange Syndrome (CdLS) Foundation is a not for profit [501(c)(3)] voluntary health organization, incorporated in Massachusetts and located in Avon, Connecticut (USA).
The Foundation provides a host of services that attract, educate, and unite families touched by this rare birth disorder which causes individuals to develop at a slower rate, both physically and mentally.
Each day, we enlist the support of hundreds of dedicated volunteers throughout the United States and the expertise of professionals from the fields of genetics, medicine, education, and psychology in our collective effort toward advancing both societal and scientific understanding of the syndrome.
Once you become familiar with a few features common to the syndrome, you will likely recognize the faces of people with CdLS forever. And once you come to know the faces of people with Cornelia de Lange Syndrome, we ask…
How could you ever forget?"
Robert Pattinson's Malibu Mayhem
The Rolling Stones' Farewell Tour?
Poor little girl. Sad.
My good friend's niece has CDLS and just turned 30, which is amazing in and of itself. She is a delight and sets no ceilings for herself. Please donate to this wonderful cause!
Thank you for posting this, Perez!! This condition runs in my daughter's father's family. When I was pregnant, I was obviously concerned, but my doctor had never even heard of Cornelia de Lange Syndrome. Thanks for spreading awareness!
My daughter was born with this syndrome a few years ago. She died from complications from it. Its a shock as a parent because its so random. Any one can have a baby with CDLS. Not all kids born with CDLS are as healthy or happy as the girl in the picture. My daughter was a severe case. It was a horrible experience. But I loved her and she changed my life.
Wow… shocked to see this on here. I've know children with CDLS for over 10 years and have shared info on the CDLS Foundation with others for years.
Re: MOMMIE DEAREST – You should be ashamed of yourself. Grow up, kthnxbye!
my sister has cdls. it's so hard since it's so rare to raise money and awareness - it's not nearly as common as down's syndrome or autism. thanks so much perez!
oh, and screw you mommiedearest
She's beautiful. Like a little doll.
Re: SLO&sure – my best to you and family
Perez, Thank you for featuring the CdLS foundation. My sister was born with CdLS over 17 years ago and had heart problems to go along with it. Today, she is a perfectly happy and healthy high school junior. We never could have wished for anything better. So thank you and your staff from my sister, my family, and myself for raising awareness about this little known foundation.
thanks for posting! my fraternal twin sister was born with this. doctors told my mom that she'd never walk or talk. we're 26 now and she's working full time at a preschool, lives alone, drives, has friends– everything! at points, she did struggle with anger issues, seizures, and still has problems with some of her joints (not fully extending) and getting frustrated easily. but she is a truly shining example of someone who amazingly overcomes challenges!
Re: MOMMIE DEAREST – I would be so ashamed of you if you were my child and I thank god that I don't have a child like YOU…. Please grow up your making fun of one swet little girl and I can say that because I have meet her at one of the CdLS conferences because my 7 year old daughter has CdLS and Perez THANK YOU THANK YOU THANK YOU SO MUCH FOR HELPING US GET THIS CAUSE OUT THERE FOR PEOPLE TO LEARN OR AT LEAST HEAR ABOUT my daughter still goes to Doctors who have never heard the Disorder so thank you so much these children are the best their smile lights up and brightens up my day being apart of the CdLS Foundation is like haaving another family
Thank you Perez!! My Mason with CDLS thanks you! CDLS are some of the most happy children you will ever come to know!!!
I am an adult Girl Scout member and had to amazing opportunity to care for children with CdLS at the various conferences. What an honor to meet so many individuals full of life and love. There are no words to explain the contagious energy and spirit of these amazing people! What a great thing to feature Perez! Made my day!
Not one penny goes to the victims; all the money pays the staff HUGE SALARIES while all they do for the sick kids is basically get them on food stamps & SSI to suffer in absolute poverty.
The only "tard" I see is the idiot trying to compensate for his/her ignorance by posting something like the comment by Mommie Dearest.
Anyone willing to open their heart to a person with CDLS will be blessed beyond their imagination!
Thanks for the post Perez!
Thank you Perez! My daughter, Cambria is 4 months old and was diagnosed with CdLS. I have met many families that also have children with CdLS and they are all my heroes and inspiration.
MommyDearest: You're pathetic. Not all children/ people with CdLS are mentally retarded. They may be slow, but not retarded. YOU ARE!
PamsSiliconBreasts: CAN YOU NOT READ??? The CdLS foundation is NON PROFIT and ran by family members and VOLUNTEERS! Read before you speak and make and idiot out of yourself. Spend your money on a higher education instead of boobs.
I have a son with cdls, he's so sweet! Mommie dearest, please change your nickname, you are everything but not the dearest!!!
Perez: LOVE YOU FOR POSTING!!! My daughter has CDLS and I cannot tell you how much the foundation has done for my family and other families affected by her sydrome…I think Pams silicone has leaked into her brain for posting the BS about high salries etc, that is simlpy completely bogus for this foundation.
Mommie Dearest: Karma is a bitch…hope she visits you soon with a nice smack to the side of your ignorant, hateful, ugly head.