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All tag results for anencephaly

Baby Born Without Brain Dies At 3

Filed under: Baby BlabberR.I.P.InspirationSad SadHealth

Nicholas Coke was born with anencephaly, an incredibly rare defect that kept him from growing a brain as a fetus.

Obviously, doctors expected him to die within minutes, but Nicholas shocked everyone when he refused to let go.

Ch-ch-check out the video (above) to see how the miraculous baby defied the odds, living years beyond what doctors predicted.

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Facebook Bans Photos Of Deformed Deceased Baby

Filed under: Baby BlabberInspirationSad SadFamily


Facebook has been in the news, lately.

It's back in the spotlight again, but this time it's for all the wrong reasons!

The social media conglomerate banned pictures of Heather Walker's deceased infant son, Grayson, who was born with Anencephaly - a rare brain disorder which prevents the brain from fully developing.

Although the mother and father knew early on that their baby would not survive, they decided to give birth to him anyway even though they knew he'd only live for a short time.

Her story gained legs from a blog she kept on her family's experience, and professional photographers were sent in to the mother's hospital room to shoot pictures of her holding her deceased baby.

After Walker uploaded pictures of the emotional day on her Facebook profile to her friends and family she soon realized that Facebook wasn't interested in her sharing this emotional story and BANNED Walker's pictures and blocked her from the social media website for 24 hours.

Here's what Walker said:

"Facebook deleted them because of the 'content', they allow people to post almost nude pictures of themselves, profanity, and so many other things but I'm not allowed to share a picture of God's beautiful creation."

Walker executed a useful loophole on Facebook by posting the photos of Grayson on a newly created fan page, and after twenty four hours the pictures were back up on her profile which only her friends were able to see.

Afterwards, Walked posted on her blog an emotional written piece on her experience. She said:

"As I was watching Private Practice last night, I was taken back to that day for a moment. Amelia, one of the doctors, had a baby with anencephaly. As she voiced what she was feeling that day, I too can relate. I remember lying in the hospital bed wondering if he was going to be alive or how long he was going to live. I wondered what he was going to look like.  So many thoughts rushed through my brain that Wednesday morning. Of course he was perfect and fought for 8 hours. He was so beautiful and sweet."

This is an incredibly emotional and sad story, but we're so happy that Walker was finally able to show the world the photos of her love on Facebook.

We think it was a necessary step for her to overcome her great loss and subsequent grief.

All our regards to the Walker family.

[Image via Jessica Walker.]

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