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All tag results for cystic fibrosis

Ed Sheeran Serenades A Young Girl With Her Favorite Song Minutes Before She Passes Away

Filed under: Sad SadTwitterEd SheeranHealth

ed sheeran serenades dying girl irish sad last wish

How sweet of Ed Sheeran to grant this 15-year-old girl her final wish to hear him sing her favorite song!

Dublin native, Triona Priestley was diagnosed with cystic fibrosis early in her childhood and has been battling the disease ever since then.

One of her wishes was to hear Ed sing her favorite song, Little Bird, and so, through the power of social media, Triona got her wish!

After a vigorous Twitter campaign

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Kentucky Boy Battling With Cystic Fibrosis Who Tried To Set X-Mas Card Record Passes Away

Filed under: R.I.P.Sad SadCute Kidz

This is just plain out sad!

Last month, Dalton Dingus racked up more than 500,000 Christmas cards, which made him the top contender for most cards received during a holiday season… but unfortunately, he recently passed away.

The 9-year-old boy was suffering from stage four cystic fibrosis, which led him to have to always wear a face mask to help him breath in 12 liters of oxygen. He was also taking 18 different medications on a daily basis.

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Boy Suffering From Stage Four Cystic Fibrosis Set Record For Most Received X-Mas Cards!


9-year-old Dalton Dingus from Kentucky is currently suffering from stage four cystic fibrosis, and just when his mommy Jessica said the "doctors had given up on him" and only gave him "two to eight days to live…" he began to feel better and even set the record for most received Christmas cards!!

According to the Guinness World Records spokeswoman, Jamie Panas, the organization "currently does not monitor a category for this."

However, since he has received

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The FDA Has Just Approved The First Drug To Combat Cystic Fibrosis!

Filed under: HealthScience!

Cystic Fibrosis Med

This is fantastic news!

The FDA has just approved a Vertex drug called Kalydeco, which is the first drug aimed at treating the underlying cause of Cystic Fibrosis, which is a genetic disease.

The sad news is that Kalydeco aims to treat a protein that causes CF in only about 4% of cases… but this is a huge step because they're testing Kalydeco in conjunction with other treatments that aim to take on 90% of CF patients!!

Right now, CF affects about 30k of people in the U.S. alone.

With all this good news, we were hoping that it wouldn't be absurdly expensive — and at the required two pill a day, it still seems terribly steep: $294,000 a year!

ARE YOU KIDDING US? You really can't do any better than that when you're in the business of helping people??

The worst part is that they know they can charge that because people need it.

Either way, we're glad there's something now. We just hope they get some competition soon to bring that price down.

[Image via AP Images.]

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