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Parents Let Terminally Ill 5-Year-Old Daughter Make Her Own End-Of-Life Decision — And Choose 'Heaven' Over Hospital

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A 5-year-old girl with a rare, incurable disease told her family that she'd rather go to heaven than go back to the hospital — and her parents are honoring her request.

Michelle Moon and Steve Snow's daughter Julianna has a neurodegenerative illness called Charcot-Marie-Tooth disease, which renders her coughing and breathing muscles so weak that she will likely end up sedated on a respirator with very little quality of life.

What Julianna's religious parents have chosen to do has sparked a huge debate: they asked their daughter if she would want to go to the hospital the next time she falls ill, or if she wants to stay home — where she would die and "go to heaven."

Related: Taylor Swift Gives Six-Year-Old Cancer Patient A Perfect Night!

Before asking her daughter's thoughts on the matter, Michelle searched for guidance about having end-of-life talks with a young child.

Finding nothing, she contributed to The Mighty — a website where people write about dealing with disabilities and diseases — to post the discussion she had with Julianna in which she stated she didn't want to go to the hospital again.

The conversation went as follows:

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