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“The Cornelia de Lange Syndrome (CdLS) Foundation is a not for profit [501(c)(3)] voluntary health organization, incorporated in Massachusetts and located in Avon, Connecticut (USA).
The Foundation provides a host of services that attract, educate, and unite families touched by this rare birth disorder which causes individuals to develop at a slower rate, both physically and mentally.
Each day, we enlist the support of hundreds of dedicated volunteers throughout the United States and the expertise of professionals from the fields of genetics, medicine, education, and psychology in our collective effort toward advancing both societal and scientific understanding of the syndrome.
Once you become familiar with a few features common to the syndrome, you will likely recognize the faces of people with CdLS forever. And once you come to know the faces of people with Cornelia de Lange Syndrome, we ask…
How could you ever forget?”
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