TikTok/Brooke Eby
The world has lost a beautiful, brave soul.
Brooke Eby, a TikTok star known for sharing strength, humor, and resilience even in the face of ALS, has died at 37.
The ALS Network shared the news on their website, “mourning the passing of Brooke Eby, an extraordinary advocate, storyteller, community builder, and friend whose honesty, humor and determination changed how countless people understood ALS.”
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Their statement continued:
“Diagnosed with ALS at just 33 years old, Brooke made the deeply personal decision to share her experience publicly. She did so in a way that was unmistakably her own – candid, vulnerable, funny, irreverent, and remarkably human.
Millions came to know Brooke through her social media presence, where she offered an unfiltered window into living with ALS. She could explain a devastating reality, challenge a misconception, and make people laugh, sometimes all in the same post.
Through that storytelling, Brooke helped bring ALS to people who previously knew little about the disease. She turned awareness into understanding and understanding into action. Yet some of Brooke’s most enduring impact happened in the community she created for others living with ALS.
Brooke founded ALStogether, an online peer Slack community built around a simple but powerful idea: people navigating ALS should have a place to find others who understand what they are experiencing.”
Sheri Strahl, president and CEO of the ALS Network, remembers Brooke as a person who “changed the way people see ALS, but she also changed the way people living with ALS find and support one another.”
Read the full ALS Network statement here.
Brooke, whose TikTok handle was @limbbroozkit, shared her diagnosis story years ago after first experiencing symptoms at 29. Watch below:
Even as her condition progressed, she never lost her spirit. These photos were posted just two weeks ago:
Her impact will live on and touch the lives of those affected by ALS forever.
May she rest in peace.
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[Image via Brooke Eby/TikTok.]